Mac Gavan familyThe family of a six-year-old who needs a new heart said the news that he was back on the transplant waiting list had “bred hope back into their lives”.
But his father Martin Mac Govern said the news meant there could be “light at the end of the tunnel”.
The family found out while on a “magical” vacation to Disneyland and having a “summer of Daithi dreams.”
“We brought back a bit of magic,” he told BBC News NI.
“It doesn't guarantee Daiti will get a new heart, but it does ensure he has every fighting chance of getting it,” he said.
“The power of hope is incredible, and it has a huge impact on our entire family.”
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It's been a roller coaster year for Daiti and her family. Daiti's Law is named after my 6-year-old son. Enacted in JuneThis will mark a major change to the way organ donation works in Northern Ireland.
His family has long campaigned for changes to the Organ Donation Act, which would bring Northern Ireland in line with the rest of the UK and provide access to most adults unless they opt out or are eligible for an exemption. They will be considered potential donors. group.
mcauley multimediaMac Gavan said that when his family learned he would be taken off the suspended list in the same month, “a dark cloud descended over us”.
However, the news of his return to the list was like “the sun shining through the clouds.”
“It was a dream June for him, a nightmare July and now it's back to a dream August,” he said.
“We hope that he will continue to make the most of his life, create precious memories, and in the process raise awareness for organ donation and improve his chances.”
