Home Bone marrow transplantion Clontarf mother asks public to donate blood after infant diagnosed with rare disease

Clontarf mother asks public to donate blood after infant diagnosed with rare disease

by Amy Donohoe
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A DUBLIN mother is appealing to the public to donate blood after her young daughters received a life-saving bone marrow transplant.

Sarah Nolan from Clontarf has come forward. rare disease day We talk about our two-year-old daughter Aine, who has marble disease.




Pelosia, or petrosia, is characterized by excessive density of bones throughout the body.

Infantile marble disease affects 1 in 250,000 people. If detected in the early stages, the only treatment is a bone marrow transplant.

The twins, Aine, have been hospitalized several times, the longest being 108 days.

Aine’s mother told Dublin Live: She said, “Aine is a very happy girl, she is very cheerful and has a wonderful smile.

“She underwent a life-saving bone marrow transplant in July 2021 and has been admitted to the ICU twice, developed sepsis twice, and experienced many more transplant complications. She suffered from hydrocephalus due to damage caused by her thickened skull. and suffers from visual impairment.

“Our love never stops despite all of this. She is always smiling and laughing and is very cheerful.

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